Welcome to the Heterotaxy Hope Organization (H2O) website and blog! Thank you so much for visiting us. Heterotaxy Hope Organization (H2O) began in 2005 as RIASN (Right Isomerism and Asplenia Syndrome Network) and achieved 501 (c)3 status in 2009.
Here we will keep you updated on what Heterotaxy Hope Organization (H2O) is doing. H2O is part of the heterotaxy community. We are heterotaxy families who have united to spread awareness of this rare complex syndrome. It is our hope that you will be inspired to spread awareness, make a change in the heterotaxy community, and feel connected to others.
As a visitor to the site, we hope you find the information easy to navigate, especially if you are looking for information about heterotaxy syndrome. Please feel free to download our brochure or request a brochure via email. The Heterotaxy Hope Organization’s brochures provide much needed information to the heterotaxy community and medical professionals.
Please explore our website and blog. We appreciate any feedback you give us. We also welcome new ideas on how we can improve our website and blog. Thank you again for visiting and please don’t hesitate to reach us at heterotaxy.hope@gmail.com.
